WHO WE ARE Fueled by passion and urgency, the National Kidney Foundation is a lifeline for all people affected by kidney disease. As pioneers of scientific research and innovation, NKF focuses on the whole patient throug…
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$60k–$119k/yr
Part-time
postgraduate degree
Posted 24d ago
~40 hrs/week
Remote in United States
Responsibilities
Leads the patient engagement strategy to integrate the patient voice into research, policy, advocacy, and program development. Manages relationships with patients, care partners, and external stakeholders to advance patient-centered initiatives.
Requirements
Requires a Master's degree (MPH or MSW preferred) and at least five years of experience in a multifaceted nonprofit organization. Must possess strong research skills and the ability to translate complex medical information for patients.
Full job description
WHO WE ARE
Fueled by passion and urgency, the National Kidney Foundation is a lifeline for all people affected by kidney disease. As pioneers of scientific research and innovation, NKF focuses on the whole patient through the lens of kidney health. Relentless in our work, we enhance lives through action, education, and accelerating change.
WHAT WE BELIEVE IN
NKF’s Mission is what we do; our Values are how we do it
Accountability — Earn and keep trust
Collaboration — Work as a team
Communication — Empower with information
Community — Build stronger community
Compassion — Lead with care and respect
Impact — Focus on the mission Your Voice Matters: kidney.org/about/diversity-equity-inclusion
The Senior Director of Patient Engagement leads NKF’s patient engagement strategy, ensuring the patient voice is meaningfully integrated across research, policy, advocacy, education, and program development. This role builds and manages relationships with patients, care partners, volunteers, and external stakeholders to advance patient-centered initiatives across the kidney community.
Working collaboratively across NKF teams and with external partners, the Senior Director develops engagement opportunities such as advisory boards, focus groups, surveys, and interviews; recruits and supports patient volunteers; and helps establish best practices for meaningful patient partnership. The role also serves as a thought leader in patient engagement, helping shape organizational strategy and foster a culture of inclusive collaboration that improves care and outcomes for people affected by kidney disease.
WHAT YOU’LL DO
Coordinate strategic patient engagement initiatives across NKF and with external partners to ensure the patient voice is meaningfully integrated into research, care, advocacy, drug development, educational initiatives, and program development
Develop and lead training programs, tools, and resources for patient volunteers, advocates, living donors, care partners, and community members to support meaningful engagement across all levels of care, research, and policy
Conduct qualitative and quantitative research activities, including interviews, focus groups, survey design, data analysis, and preparation of narrative summaries and insight reports
Co-author white papers, abstracts, posters, manuscripts, and other publications in collaboration with patients, care partners, and family stakeholders
Serve as an NKF spokesperson on patient engagement, patient-centered programming, kidney disease care, and treatment, as appropriate
Build and maintain strong relationships with external stakeholders, including patient advocates, community organizations, healthcare providers, government agencies, advocacy groups, and pharmaceutical companies
In collaboration with the Kidney Learning Solutions (KLS) team and other cross-functional teams, consulting and supporting patient-centered programs and services designed to educate, empower, and support individuals affected by kidney disease. This includes print and digital educational materials, surveys, research projects, and needs assessments
Collaborate closely with NKF’s grassroots advocacy network, including the Kidney Advocacy Committee, and partner with the Government Relations team to coordinate advocacy and patient engagement activities
Support patient engagement related business development initiatives, revenue strategy, grant development, and funder deliverables
Partner with Government Relations, as needed, to advance initiatives and policies that support individuals affected by chronic kidney disease and dialysis, including analysis of legislation and regulatory proposals impacting constituents
Stay informed on emerging trends, public policy, legislation, medical advances, research, publications, and conferences related to kidney disease and dialysis care
Perform additional duties as assigned
WHAT YOU’LL BRING
Master’s degree from an accredited college or university required; MPH or MSW preferred
Minimum of five (5) years of related experience working in a multifaceted nonprofit organization
Strong stakeholder engagement, relationship management, and coalition-building skills
Experience with patient-centered outcomes research (PCOR) and patient/public involvement and engagement (PPIE)
Experience conducting qualitative and quantitative research, including surveys, interviews, focus groups, data analysis, and impact measurement
Demonstrated experience in strategic planning, program development, and execution
Ability to translate complex medical and scientific information into patient-friendly language
Excellent oral, written, interpersonal, organizational, and presentation skills
Strong analytical, problem-solving, decision-making, consultation, and planning abilities
Experience with volunteer engagement, advisory boards, community outreach, and digital engagement strategies preferred
Knowledge of the current healthcare environment, including trends, challenges, policy, and issues impacting patients and healthcare professionals
Experience advancing health equity initiatives and engaging historically underrepresented and underserved communities strongly preferred
Experience with communications strategy, storytelling, public speaking, and content development preferred
Knowledge of healthcare policy, regulatory, advocacy, and clinical research environments preferred
Demonstrated ability to work independently and collaboratively as part of an integrated, cross-functional team
Proficiency with Microsoft Office products, databases, social media platforms, and digital collaboration tools
Experience with grant support, partnership development, and cross-sector collaboration preferred
Ability to travel occasionally, including overnight and weekend travel, as needed (approximately five trips annually), and work additional hours when required
LEADERSHIP COMPETENCIES
Accountability — Establishes organizational accountability, driving performance across all levels
Change Leadership — Delivers or leads large-scale organizational change, setting direction and guiding teams through transformation
Collaboration — Leads collaborative efforts across the organization and actively builds partnerships with external stakeholders to advance the mission
Data-Driven Decision Making & Results Orientation — Leverages accurate, comprehensive analytics to guide strategic planning, sets high-impact targets, and ensures delivery on commitments
Operational Excellence — Leads or delivers large-scale operational improvements that elevate organizational performance
Stakeholder Engagement — Shapes and directs a broad spectrum of strategic stakeholders to influence policy and advance NKF’s impact
Financial Acumen — Applies strategic financial judgment in planning, resource allocation, and long-term sustainability
People Leadership — Sets high-impact goals, develops talent, and ensures teams deliver on strategic commitments
Innovation — Champions strategic innovation and process optimization that position NKF as a leader in kidney health
DEI 4A & Cultural Humility — Advances diversity, equity, and inclusion for all, ensuring policies, programs, and services are designed with an equity lens
WORKING CONDITIONS & SPECIAL INFORMATION
This role requires unimpeachable integrity and trustworthiness, with a high degree of tact, discretion, and professionalism. It operates in a fast-paced, high-profile environment and depends on excellent verbal and written communication and the ability to maintain effectiveness under pressure. Standard office technology and collaboration tools are used daily. The position may require occasional lifting of materials up to 25 lbs., overnight business travel, and flexibility to work evenings and weekends as needed. Reasonable accommodations may be made to enable individuals with disabilities to perform the essential functions of the role.
EQUAL EMPLOYMENT OPPORTUNITY
At the National Kidney Foundation, diversity, inclusion, and equal opportunity apply to both our workforce and the communities we serve as they relate to kidney health and kidney disease prevention. It is the policy of NKF to provide equality of employment opportunity regardless of race, creed, color, qualified handicap or disability, national origin, religion, marital status, sexual orientation, age, gender, political affiliation or veteran status, or any other factor or reason prohibited by relevant local, state, and federal fair employment laws.
The Equal Employment Opportunity policy applies to all employment practices of NKF, including but not limited to recruitment, hiring, promotion, training, compensation, benefits, layoffs, transfers, and discipline. Implementation of the Equal Employment Opportunity policy is the shared responsibility of the management of NKF. The National Kidney Foundation is an Equal Opportunity Employer.
DISCLAIMER
The above statements are intended to describe the general nature and level of work being performed by people assigned to this position. They are not intended to be considered an exhaustive list of all responsibilities, duties and skills required.
The salary band listed reflects the range for this position. Actual compensation will be determined based on the selected candidate’s experience, qualifications, and other relevant factors.
We’re fighting to eliminate kidney disease, accelerate innovation, and dismantle structural inequities in kidney care.
Industry
Non-profit Organizations
Company size
51-200 employees
Founded
1950
Headquarters
New York, NY
LinkedIn followers
58,695
The National Kidney Foundation is revolutionizing the fight to save lives by eliminating preventable kidney disease, accelerating innovation for the dignity of the patient experience, and dismantling structural inequities in kidney care, dialysis and transplantation.
Follow us on Twitter: https://twitter.com/nkf
Like us on Facebook: https://www.facebook.com/nationalkidneyfoundation
Instagram: @nationalkidneyfoundation
Offices: 30 East 33 Street, New York, NY 10016, US
Patient Education and AdvocacyClinical Practice GuidelinesProfessional EducationProfessional MembershipKidney Early Evaluation Screeningsand Kidney AwarenessHealth CareBiotechnology
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