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Contract
Posted 1d ago
~40 hrs/week
Remote in United States
Responsibilities
The columnist is responsible for writing weekly personal essays about life with Lennox-Gastaut syndrome to inform and support the patient community. They must also collaborate with professional editors to refine drafts and meet established deadlines.
Requirements
Applicants must be members of the Lennox-Gastaut syndrome community, preferably caregivers with at least three months of direct care experience. Candidates are required to have prior experience writing for an audience and possess strong English language skills.
Full job description
Job Opening Details:
Bionews, a digital news company dedicated to creating communities for patients with rare and chronic diseases and their caregivers, is looking for members of the Lennox-Gastaut syndrome (LGS) community to join our freelance staff of caregiver columnists on Lennox-Gastaut Syndrome News.
A Bionews columnist is a patient or caregiver who shares about life with a rare or chronic disease. They write personal essays in a column format to inform, inspire, empathize, and advise. Their audience includes patients, caregivers, medical teams, and researchers. Columnists also write to a general audience interested in learning how to improve society's understanding and treatment of disease/disability communities.
All columns are reviewed with a critical eye by professional editors who will work with columnists to smooth rough spots and help the columnist grow as a writer. This is a contract position.
Please note you MUST be a member of the Lennox-Gastaut syndrome community -- caregiver preferred -- in order to apply for this position.
Responsibilities and Duties
Fulfill 1x weekly deadlines as agreed upon on hire.
Communicate efficiently with your managers and editors.
Submit 400-800 word drafts that adhere to Bionews policies and procedures.
Aside from exceptions, drafts should not take more than 45 minutes to edit.
Fulfill revisions as requested by editors in a timely manner.
Complete training assigned by Bionews HR.
Experience Required
Prior experience with writing for an audience.
At least three months’ direct experience with caring for someone with LGS.
Caregivers must be direct relatives, guardians, or spouses.
Experience Preferred
Experience in being professionally edited for publication.
Experienced in generating a blog or column.
Participation in support groups, internet forums, or community groups relevant to LGS.
Knowledge Required
Fundamentals of how LGS works.
Knowledge Preferred
The content needs or wants of the LGS community.
Skills Required
A swift and independent learner of Internet technology.
A creative mind capable of regularly generating unique content that appeals to target audiences.
Time management.
Advanced creative writing.
Skills Preferred
Experience in using WordPress for content creation.
Experience with the Slack communication app.
Abilities Required
Internet access and use.
Native or fluent English writing and reading abilities.
Who is Bionews? Bionews is a leading online health, science, publication, and research company with one purpose: to serve patients with a rare or chronic disease. We do this by connecting them with current, trusted, and relevant news and information. This content is delivered regularly and provided by actual patients as well as professional journalists, writers, editors, scientists, and experienced media executives. Our end customers are truly patients living with rare and chronic diseases. Visit www.bionews.com for more information.
Bionews Vision To empower, inspire, and champion the patient voice as the preeminent resource that engages, informs, and connects the global rare and chronic disease community.
Bionews Purpose We connect rare and chronic disease communities by providing a unified and distinctive space to engage, educate, and empower those affected by rare diseases to help improve patient health and quality of life.
Bionews is a digital health solutions company dedicated to empowering more than 50 rare disease communities with trusted information, news, and connections. We foster a space where hope thrives and patients' voices are heard.
Since 2013, we've been committed to serving patients and elevating their voices. Our motto is "For Rare, By Rare." With more than 50% of our team living with or caring for someone with a rare condition, we understand the unique challenges and needs of these communities. We've built a network of more than 500,000 registered members actively seeking news, clinical information, and sharing experiences. This creates a safe space for peer support, connection, and learning. Bionews offers a comprehensive platform serving a wide range of rare diseases, from larger condition specific communities including pulmonary fibrosis to smaller communities such as AADC.
Visit Bionews.com to explore our communities and discover how we're making a difference for those living with rare diseases.
Offices: 3 W Garden St, Suite 700, Pensacola, Florida 32502, US
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How many Science & Research jobs are open in Pensacola, FL right now?
There are currently 72 open science & research positions in Pensacola, FL listed on Clera. New openings are added daily as companies post roles.
Which companies are hiring for Science & Research roles in Pensacola, FL?
Companies currently hiring include Ascension, Danaher, Bionews, Inc., Laboratory Corporation of America Holdings, Baptist Health Care, among others. Browse the listings above to see every active employer.
Are there remote or hybrid Science & Research jobs in Pensacola, FL?
Yes — 12 of the 72 open science & research positions offer remote or hybrid work (9 remote, 3 hybrid).
How do I apply for Science & Research jobs in Pensacola, FL?
Each listing links directly to the employer's application page. Apply early — fresh listings get the most recruiter attention in the first two weeks.