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Amyloidosis Research Consortium (ARC)

Director of Development

full-time•Newton

Summary

Location

Newton

Type

full-time

Experience

10+ years

Company links

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About this role



About the Position

The Director of Development will lead the strategic growth of ARC’s philanthropic revenue. This individual is responsible for the full donor lifecycle—from discovery to stewardship—with a heavy emphasis on high-touch major gift fundraising. The Director will manage an active portfolio of donors and prospects, secure new institutional and foundational giving, craft donor-facing communications and materials,empower a Board Development Working Group to expand ARC’s influence and financial sustainability, and serve as a key advisor to the CEO.


Reports to: Chief Executive Officer (CEO).


Management: Supervises Development Operations Manager, whose responsibilities include CRM/Salesforce and data management, acknowledgements and receipts, mid-year and annual direct mail and electronic appeals, foundation and grant tracking, and donor prospecting, research and reporting to advance new constituents with major donor potential coming into the organization.


Location: Remote, organization is based in Newton, MA but team is fully remote.


Travel: 25%-35% to meet with donors, attend staff gatherings, and related conferences and events.



Responsibilities

Major Gift Leadership & Portfolio Management

  • Direct Solicitation: Own and advance a personal portfolio of 75+ major donor prospects, driving the strategy for discovery, cultivation, and engagement; actively engage in weekly 1:1 calls and emails with donors within the portfolio and to prospective donors.
  • Pipeline Management: Lead bi-weekly donor pipeline review meetings with the CEO and Development Manager to ensure rigorous movement and accountability across all prospects; design, own, and maintain the structure of the donor pipeline, including stages, qualification criteria, and movement standards.
  • CEO Partnership: Serve as the lead strategist for the CEO’s portfolio of 25+ top-tier prospects, providing the research, briefing materials, and follow-up support necessary to close transformational gifts.

Communications & Operations Oversight

  • Messaging & Collateral: Craft compelling donor-facing materials, including the Case for Support, impact narratives, and mission-driven storytelling.
  • Program Alignment: Ensures alignment between fundraising strategy, communications, and program needs; organizes and manages work with program/department leads to produce major donor materials.
  • Revenue Ownership: Owns all development revenue targets and forecasting, using a clear, disciplined methodology to set achievable growth goals, regularly reforecasting to flag risks early.
  • Team Management: Directly manage the Development Operations Manager, ensuring excellence in:
    • Data Integrity: Oversight of Salesforce/CRM management and reporting.
    • Annual Giving: Execution of mid-year and annual direct mail/electronic appeals.
    • Donor Intelligence: Robust research and prospecting to identify new constituents with major gift potential.
    • Donor Follow-up: Ensure prompt phone and email follow-up to donor inquiries.
    • Compliance: Timely acknowledgments, receipts, and grant tracking.

Board & Volunteer Engagement

  • Development Working Group: Build, educate, and manage a dedicated group of volunteer leaders.
  • Leveraging Networks: Support this group in cultivating a collective portfolio of 10–25 high-level prospects.
  • Regional Events: Organize and execute efficient, high-impact regional donor engagement and solicitation events hosted by volunteer leaders.

Institutional & Foundation Growth

  • Philanthropic Foundations: Lead the strategy for non-industry foundation support, including proactive research, drafting Letters of Intent (LOIs), and developing full grant proposals and stewardship reports.
  • Expert Integration: Facilitate meaningful engagement between donors and ARC’s internal and external subject-matter experts to demonstrate the technical impact of their support.



Core Expectations

  • Player-Coach Leadership: Moves seamlessly between strategy, leadership, and hands-on execution; able to design high-level fundraising plans and personally carry responsibility for implementing them.
  • Capacity-Aware: Operates effectively within the resourcing realities of a small nonprofit, adapting ambitions to available staffing, systems, and budget.
  • Outcomes Ownership: Takes full ownership of development results; responsible not just for creating plans, but for ensuring they are executed, adjusted, and ultimately successful.
  • High-Accountability: Thrives in environments that are evolving and growing; brings clarity, momentum, and accountability even when conditions are dynamic.


Qualifications

  • Experience: 8+ years of fundraising experience, specifically in major gifts and foundation relations (disease-specific nonprofit or foundation experience preferred).
  • Technical Proficiency: Proficient knowledge of Salesforce or similar CRM systems for pipeline management.
  • Leadership: Proven ability to manage staff and work effectively with high-level volunteers and C-suite executives.
  • Communication: Superior writing and presentation skills, with the ability to translate complex scientific research into moving philanthropic narratives.


Performance Success Indicators

  • Achieve individual donor and major gift revenue targets.
  • Growth in the total value of the major gift pipeline.
  • Success rate of the CEO’s top-prospect solicitations.
  • Growth in annual gift pipeline, including conversion of constituents into donors.  
  • Increase in donor engagement through high-quality, targeted communications and materials 
  • Engagement of Board in donor cultivation and stewardship toward solicitation. 
  • Achievement of non-industry foundation revenue targets.
  • Data accuracy and timely stewardship reporting.


This is an exciting opportunity to work at a growing organization, with a team that values a diversity of experience and demonstrates an unwavering commitment to the amyloidosis community.



Equal Employment Opportunity
 We are proud to be an equal opportunity employer – and celebrate our employees’ differences, regardless of race, color, religion, gender, sexual orientation, gender identity, national origin, age, disability, or Veteran status.



Additional Information

Remote Work Opportunity - Work Schedule & Expectations:

This is a full-time, exempt position requiring 40 hours per week. The role is fully remote, with standard working hours from Monday to Friday, 9:00 AM to 5:00 PM Eastern Time, to ensure effective collaboration with the team.


Comprehensive Benefits Package:

  • Paid Time Off (PTO): 4 weeks of vacation time, 8 days of sick leave, 10 holidays, and 2 floating holidays. Additionally, we offer PTO-Free Days during the extended holiday break from Christmas to New Year’s Day.
  • Medical, Dental, Vision Insurance: Employees have access to comprehensive contributory health plans; and ARC covers 65% of individual and family medical and dental insurance premiums.
  • Life and Disability Insurance: 100% employer-paid Life and AD&D coverage, along with Short-Term and Long-Term Disability insurance.
  • Flexible Spending Accounts (FSA): Options for both Health and Dependent Care FSAs.
  • 401(k) Retirement Plan: Up to a 4% employer match to support your financial future.
  • Additional Benefits: Employee Assistance Program (EAP), Workers’ Compensation, and other resources to support your well-being.

What you'll do

  • The Director of Development will lead the strategic growth of ARC’s philanthropic revenue, managing a portfolio of major donor prospects and overseeing donor communications. They will also empower a Board Development Working Group and serve as a key advisor to the CEO.

About Amyloidosis Research Consortium (ARC)

The Amyloidosis Research Consortium (ARC) addresses critical needs in clinical trials and related research for the underserved group of systemic amyloid diseases. We have created a collaborative research model to bring together experts in the field to address the challenges that exist in developing diagnostic tools and to carrying out innovative clinical trials. Stay up to date with the latest news and research from ARC's newsletter: http://www.arci.org/newsletter-sign-up ARC is committed to building collaborative relationships between patients, academia, industry, foundations, federal funders, and regulators to advance the best research and speed new therapies to market. ARC is focused on increasing the amount of research and building a prioritized portfolio of translational research and clinical research. The work of the Amyloidosis Research Consortium has been made possible through the generous support of our donors. With continued funding of our strategic and vital research programs, you are investing in a promising future for amyloidosis patients. You can donate here: www.arci.org/donate

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Frequently Asked Questions

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As a Director of Development at Amyloidosis Research Consortium (ARC), you will: the Director of Development will lead the strategic growth of ARC’s philanthropic revenue, managing a portfolio of major donor prospects and overseeing donor communications. They will also empower a Board Development Working Group and serve as a key advisor to the CEO..

Is the Director of Development position at Amyloidosis Research Consortium (ARC) remote?

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The Director of Development position at Amyloidosis Research Consortium (ARC) is based in Newton, Massachusetts, United States. Contact the company through Clera for specific work arrangement details.

How do I apply for the Director of Development position at Amyloidosis Research Consortium (ARC)?

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You can apply for the Director of Development position at Amyloidosis Research Consortium (ARC)directly through Clera. Click the "Apply Now" button above to start your application. Clera's AI-powered platform will help match your profile with this opportunity and guide you through the application process.
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